World IBS Day – April 19th: Raising Awareness for IBS Sufferers
What does success look like for someone with IBS to be shared in a Patient video on #WorldIBSDay2023 April 19th to raise awareness about the quality of life issues while living with Irritable Bowel Syndrome
TORONTO, CANADA (PRWEB) March 30, 2023
Irritable Bowel Syndrome (IBS) is often stigmatized and misunderstood with symptoms significantly impacting the quality of life for many patients. World IBS Day on April 19th with the support of QOL Medical – CSID will join patients, family members, healthcare professionals and industry to increase awareness about IBS. Irritable Bowel Syndrome is a common digestive disorder which can significantly impair a patient’s quality of life due to its recurring episodes of abdominal pain, discomfort and bowel changes in diarrhea or constipation.
This year’s theme for World IBS Day is The IBS Experience: IBS Chat through a Patient video. A video montage in the patient’s own voice submitted via the World IBS Day website (worldibsday.org), will be part of a free patient webinar event on World IBS Day as well as shown at Digestive Disease Week in May in Chicago, Illinois to illustrate the patient journey with IBS. Patients can sign up for the free April 19th webinar at tinyurl.com/WorldIBSDay. Additional events can be found on the World IBS Day website. We also ask everyone to use the hashtag #WorldIBSDay2023 to help raise awareness on April 19th.
World IBS Day is supported by Partners and friends from Australia, Austria, Canada, Denmark, France, Germany, India, Ireland, Italy, Malaysia, Netherlands, Norway, United Kingdom, and United States. Organizations, institutions, vendors and industry involvement are invited to add their events and support. World IBS Day social banners are available to download.
“We are happy to support World IBS Day in their effort to reassure patients that they are not alone. Empowering patients is one of our priorities. We encourage people to ask their healthcare provider a lot of questions when discussing their symptoms. Sometimes, arriving at a proper diagnosis begins with a simple question, “Could it be…? Congenital Sucrase-Isomaltase Deficiency (C-S-I-D), is a rare and often misdiagnosed disease. CSID symptoms look a lot like IBS. We hope that by joining forces we can provide awareness, resources, support, and education to patients.” Anthony DElia, VP Marketing, QOL Medical.
Jeffrey Roberts, Founder of World IBS Day and IBS Patient Support Group stated that, “World IBS Day was established to take place every year on April 19th to raise awareness about Irritable Bowel Syndrome by reducing stigma and supporting both patients and those that care for them. We are grateful to add QOL Medical – CSID as our Lead Partner for 2023 so we can highlight the IBS mimicker of Congenital Sucrase-Isomaltase Deficiency (CSID). We want patients to understand that other conditions can also explain their symptoms.”
We are also thankful for the support from our 2023 Fellow Partners of Ardelyx, Ironwood, Mahana Therapeutics, metaMe Health, Salix Pharmaceuticals, Schär, For a Digestive Piece of Mind, and Tuesday Night IBS.
About Jeffrey Roberts, and the IBS Patient Support Group:
The IBS Patient Support Group was established by Jeffrey Roberts who was the founder of the first Irritable Bowel Syndrome patient community website in 1995. The IBS Patient Support Group community was launched as a public education advocacy community for sufferers and believes in evidenced-based medicine and non-anecdotal treatment options for patients. Jeffrey Roberts has been an Irritable Bowel Syndrome sufferer for over 25+ years and has worked closely with researchers, industry and patients for over 30 years. Visit https://www.ibspatient.org
About QOL Medical – Could It Be CSID:
QOL Medical is a specialty biopharmaceutical company dedicated to improving each patient’s life. They focus on solving complex, rare disease challenges with elegant solutions and want to change the world, one patient at a time. QOL Medical is focused on the treatment of Congenital Sucrase-Isomaltase Deficiency (CSID).
Jeffrey Roberts MSEd, BSc
Founder World IBS Day and IBS Patient Support Group
Co-Founder Tuesday Night IBS